"No, we don’t need more sleep. It’s our souls that are tired, not our bodies. We need nature. We need magic. We need adventure. We need freedom. We need truth. We need stillness. We don’t need more sleep, we need to wake up and live." – Brooke Hampton
I guess I should explain a little bit of my journey before I begin.
At 23 i was diagnosed with Nephrotic Syndrome Minimal Change Disease. That was 5 years ago. Since then I've been on a roller coaster ride of drastic changes in my physical, emotional, and mental health. I have tried various different treatments with one common denominator: Prednisone. Most of the time at high doses. The above photo is the result of the last 5 years of my life. When I started my treatment i was 130 lbs.
My doctors have trued taking me off Prednisone many tines before with no success after getting to 20 milligrams. My kidneys just didnt like going below that number. I'd just end up in the hospital taking weeks or even months before feeling somewhat normal. As my fellow #spoonies will understand, what is normal? However, after many years and failed treatments, 6 months ago we went down a different path that has brought me to today.
Today is my first day being off Prednisone. I have other medications that my doctors say i still need to get off of so my journey is far from over, but getting to this point with no hiccups feels quite miraculous to me.
This is my journey back to health, back to taking my life back, back to gaining everything I've lost. My self love, confidence, and passion. Hopefully, this inspires someone else out there to do the same and realize that you are not alone.
Heart Exploding with Gratitude .
Those who know me well, know it is almost impossible to leave me speechless or lost for words...
Well @eaglepointelodge — there are NO WORDS.
I don’t even know where to begin, but to say a HUGE and humble thank you to the unimaginably talented and fun team at the Lodge, the ridiculously spectacular crew I had the privilege of being a part of, and @ferberly — truly, truly a weekend we will never forget. Thank you ♥️♥️♥️
One & Only Reethi Rah, Maldives
View from the bed of a 135m2 entry level beach villa